We are so happy to be home! Like I said before, I am positive God allowed us to forget how good it felt to be home. If we would have remembered how good it was, we probably would not have made it in Baltimore. Carter has been doing ok since being home. He is extremely happy to be home, but he gets frustrated that he can not get up and play with all of his toys. We spend most of Carter's awake hours riding in the stroller around our yard or riding around in the car. We are still working on weaning all of Carter's pain and sedation medications. He sleeps anywhere from 16-20 hours a day and is still pretty out of it when he is awake. We are so thankful that he is finally able to sleep. His little body needs the rest.
Brandon and I both feel like we have a 6-9 month old baby again. The past few months were extremely hard on Carter. He spent a lot of time trying to maintain life, and it made him regress. He has stopped talking almost completely, and he is back to liking his baby toys. Due to all of the medications he wakes up every 3-4 hours and then goes back to sleep. I honestly feel that once he gets his cast off and is off of all of the medications, he will revert back to where he was. Even though he is acting like a baby he is still the sweetest little boy!
We will be flying back up to Johns Hopkins this Sunday the 16th and hope to return Wednesday the 19th. Carter has an appointment to check his kidney and bladder health. He will also have his cast removed! Yay!!! We can not wait!!! Thank you all so much for all of your support and love for our family. We are enjoying each and every minute of being at home! God is good!!! As always... To Him be the Glory!!!
Carter got his first real haircut this past week. I was a little worried about taking him and how he would tolerate it. He did great though. He sat in my lap and watched Cars the entire time. The medications and fact that he had to lay flat on his back for so long made the hair on the back of his head fall out. His new haircut is SO cute. He looks so handsome!
| He is your praise and He is your God, who has done these great and awesome things for you which your eyes have seen ... Deuteronomy 10:21. I do not think I can say it enough. We are SO glad to be home!!! | |
Thank you for the update. Every night I check on carter. I am so glad that you are home, so that he can heal. I will continue to pray. To God be the glory!
ReplyDelete