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I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:14

Change of Plans...



Change of plans...again!  We originally planned to travel back to Johns Hopkins next week to have Carter’s casts, ex-fixators, catheter and stitches removed.  We received a phone call Monday stating that our plans would be changing.  We will be flying out tomorrow! Yes… TOMORROW! Carter will be going to the operating room Friday to have everything removed.  We really have no idea if we will stay one night or 10 weeks.  It depends on what Carter’s body does once everything is removed.  Our prayer is that his incision will remain intact, his bladder will not prolapse and things will remain stable enough for us to come back home and have a break!

I have to apologize for the lack of updates.  We knew our days at home were limited, and we wanted to enjoy each and every minute of it.  We are also physically and mentally exhausted.  Once we got home and somewhat settled, we realized what all had just happened.  We took our child to one of the leading medical facilities in the United States with a lot of hope.  We hoped that things would go smoothly.  We hoped that Carter’s body would be healed.  We obviously did not get those results.  God had other plans.  Brandon and I are realizing it is our job as parents to stay strong and go along with God’s plan.

I have to admit that this is hard!  Watching the daily pain Carter is going through is tough.  Not knowing what the outcome of all of this is going to be is tougher.  We are ready for this to be a memory.  We are so ready to hold and love on Carter without his casts and ex-fixators.  His ex-fixators do not allow him to sit up more than 30-40 degrees, which makes it nearly impossible to hold him.  As you can imagine, his cast also make it nearly impossible to hold him.  Brandon and I are both so ready to just hold him.  Hold him with no equipment.  He has been so strong through all of this, but we can tell that this whole ordeal is starting to take a toll on him.  His body is tired and needs rest.  Pray for rest for him.  Pray that his incision stays intact, his bladder does not prolapse out and everything is stable enough for us to come home!  Thank you all so much for your continued prayers and love for our family.  Please keep them coming!!!  As always…To Him be the Glory!!!

Telling everyone how he is going up in the air on an airplane tomorrow.



7 comments:

  1. AnonymousJuly 17, 2013 at 4:57 PM

    Praying for God to grant healing to Carter so this visit is a short one for you. May He grant all of you rest.

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  2. UnknownJuly 17, 2013 at 6:15 PM

    Praying for you guys journey tomorrow to have safe travels. I pray for the nurses and surgeon that will be with him on friday. I pray for carter to be able to rest. I pray surgery goes as planned and that everything stays in tacts amd hos bladder does not prolapse. Pray you amd brandon get some rest soon and that God heals carter. I pray that soon you will be able to hold him without all that equiptment. God has a reason for this and know he is growing you and brandon. I pray the pain ceases for carter. I pray for strength for all of you. God bless!

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  3. Betty GalyonJuly 17, 2013 at 6:24 PM

    Love to all of you and praying that this surgery is successful and u guys can get back on a "normal" schedule!!!!!!

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  4. Avery's MomJuly 17, 2013 at 6:44 PM

    Praying extra hard for y'all tonight and will keep it up. God bless y'all!

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  5. Christa HarrellJuly 17, 2013 at 7:15 PM

    So praying that God will answer all the prayers that are going up to him, the little guy has suffered so much, and I know that when he is in pain, you and Brandon are in pain also, I pray that all this will be over soon and Carter can really enjoy life!!! God bless you all, safe travels!!!!

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  6. ColleenJuly 18, 2013 at 11:17 AM

    Continuing to think good thoughts and keep y'all in our prayers.

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  7. AnonymousJuly 18, 2013 at 3:31 PM

    I will keep praying for your little guy! My daughter had twins yesterday, a boy and girl. Her little girl has OEIS complex. We are hoping for the best. Take care!

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