We made it to Baltimore yesterday. Carter was wonderful on the flight and passed out as soon as we got in the taxi taking us from the airport to the hotel. The Children's Home and Ronald McDonald house are both full. Thankfully, due to my parents and a wonderful friend we have a hotel room. I spoke with the Child Life Specialist and she said both Brandon and myself can stay with Carter in the PICU the entire time. This is a huge relief! One of my biggest fears is having to leave him and him either waking up or someone doing his care wrong. I am SO happy to know we can stay with him 24/7.
Today was all about Carter. We took him to the aquarium and on a short stroll around the Harbor. It is still really cold here so he was not able to stay out long. He had a great time at the aquarium. Tomorrow and Tuesday are filled with Doctor appointments and Carter's surgery is scheduled for Wednesday.
Carter knows something is going on, but he is just not sure what. He has been SO happy the past few days, even more happy than usual. He will start playing and break out in laughter, almost falling over from laughing. He is such a sweet and loving little boy. My heart is breaking knowing what he is about to go through, but I know his quality of life will be so much better after the surgery. He will be able to run for as long as he wants without his hips hurting. He will be living with all of his organs inside his body for the first time in his life. We just can not wait until all of this is over and he is standing strong with an amazing testimony. God has been so good to him. He has given him so much. No matter what the circumstance we give God all the Glory!
My sweet friend Laura Quick with Flutterby Photography took a few pictures of Carter this past Sunday. She did such a great job. Here are a few of the pictures. She did such a great job. They will be pictures I will cherish forever!