Carter is still very sick. He is still in almost constant pain, or maybe I should say misery. He still has the NG tube in his nose and it is still pulling out a lot of gastric secretions. Carter's GJ tube is open and it is also draining a lot of secretions. We attempted to feed Carter yesterday and he did not tolerate it. He got distended, vomited and once his J-tube was reopened all of the Pedialyte that we had "fed" him came pouring back out. Carter has also developed cellulitis around the GJ tube insertion site. Even after antibiotics he has continued to run a low grade fever. Our surgeon has a feeling that Carter's body is just not tolerating the GJ tube and has decided it will be in Carter's best interest to remove it sometime next week. He will insert a small feeding tube just to keep the hole in his abdomen open.
Carter is still extremely sick and our surgeon along with Brandon and I have decided to yet again look for answers. The resources Carter needs are just not here in Mississippi. After doing a lot of research, we will possibly be traveling to Cincinnati Children's Hospital in the next few weeks. Cincinnati Children's is known for GI excellence and is rated the best Children's Hospital in the United States for GI problems. I am not sure if Carter will be discharged so we can fly as a family to the hospital or if he will need a medical transfer. Carter is in so much pain and requiring so much pain medication right now that discharge at this time is not an option. Hopefully, after Carter's JG tube is removed the pain will go away Carter will stop the large amount of vomiting and will be discharged. If this does not happen Carter and I will be airlifted to Cincinnati Children's. I am ok either way, as long as Carter is not in pain. The next few weeks are going to be extremely busy for Carter. Please continue to pray for him. Pray for the pain to subside and for wisdom for all of the new Doctor's we are about to meet. I will never be able to say thank you enough for all of your prayers for Carter. Please keep them coming!
Carter finally got four hours of rest last night!
as always carter, and your family are in my prayers every day. many blessings coming your way
ReplyDeleteWendy & Steve Mayers & Trever Cline
Praying that God will give the doctors the wisdom they need to help little Carter. Praying that Carter's pain will start to lessen. Praying that God will give you the strength you need to care for this precious little boy.
ReplyDeleteGod is with you...all day...every day.
Van and Sarah Shaver
Continuing to pray for all of you, but especially for Carter to get some relief from the pain. I know it has to be hard on your as parents, knowing that he's hurting and mommy and daddy can't stop the pain. Continue to look up and hold on the God's guidance and support. Love to all,
ReplyDeleteMr. Mack & Ms. Dee
We are continuing to pray for your little man. Hope you find the answers to his issues. I know it is not easy to watch your child in pain. Please know my heart and prayers are with him and your family during this time.
ReplyDeleteBrandy & Rusty Yates
Praying for your family. I begin to get really teary eyed when I saw that he had awubbanubb monkey. My daughter has one and that is the best thing since sliced bread. My daughter is actually on her second one. Once again praying for Carter and his believing family
ReplyDeletePraying for your sweet family! Bless his sweet heart. I know it has to be hard watching him be uncomfortable. I pray that the doctors in Cincinnatti can help sweet carter. If you need anything pls let us know. Angie Robinson
ReplyDeleteI found this link through a friend's facebook page. I was a med student on the hospitalist team in November and had the pleasure of meeting y'all. I have been thinking about Carter since and I am so sad to see y'all are having a tough time. I am praying for you, your family, and sweet little Carter. For healing and peace.
ReplyDeleteMegan, I am so sorry you guys and Carter are having to go through all of this. You are definitely in my prayers, and I hope answers and healing come soon. - Becky Harding
ReplyDeleteContinuing to pray for answers, healing, and relief from pain.May God bless you all. So sorry for this turn of events. May God give you strength to get through everything.
ReplyDeleteMack & Dee Kennedy
Wow! How overwhelming this must be, I know you and your family are strong and have an amazing love for God. Carter is a blessing and God is holding his hand. I will pray God takes Carter's pain and gives you strength. Praying! - Cristy Lepard-Elson
ReplyDeleteYou don't know us, but we are right next door to y'all at Batson. My little boy is here with RSV. I've been reading your blog since Angie Arthur shared it, and I think of y'all often. Carter is in my prayers, and I hope you guys get the care that sweet baby needs. I didn't want to knock, since we're contagious, but wanted to introduce myself! Hope y'all have a good night!
ReplyDeleteBeth Barham