I first want to start by saying Happy New Year! We are starting our new year out with a new hospital and new hope. Carter is still struggling to tolerate his feedings. Carter has gotten worse over the past few weeks. Brandon and I, along with our Doctor's here have decided it is time to look at other options. We will be leaving Monday morning for Johns Hopkins. We will be consulting with the GI team. Just knowing they have 15 GI specialist, I feel very confident they will be able to figure out all of this. Currently Carter is still relying on his TPN and lipids (IV nutrition) for the majority of his nutrition. TPN is very harsh on the liver, so this is only a temporary fix. Carter has been on TPN and lipids for 3 months now. We are determined to get him off of them soon. We have no idea of what to expect when we arrive at Hopkins, although we have complete peace about it. Brandon and I have recently had complete peace about this entire trip and know that God is in complete control. We both feel that Johns Hopkins is where Carter needs to be. We were fortunate enough to get appointments with our Urologist and Neurosurgeon while we are there. We were completely blessed in 2011 and look forward to all God is going to do for us this year! To HIM be the GLORY!
Carter loves to read!
This is an attempt to give our family and friends a glimpse of our baby Carter's llife. I hope this will help you better understand O.E.I.S complex (Cloacal Exstrophy). Carter is a true blessing and God has a special plan for him.
verse
I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:14
Praying for y'all. Prayers for a safe trip and answers to all of your concerns! I know you are anxious and will pray specifically for your peace of mind and Carter's health during these days of appointments and waiting. God bless you all.
ReplyDeleteLove, Shea