Update on Brandon
I have been hesitant to update the blog because we are unsure of Brandon's treatment plan at this time. We do have a plan right now, but have not seen a pulmonologist yet and know that it may change. Brandon's biopsy came back negative for lymphoma, although it was positive for sarcoidosis. At this time all we know about sarcoidosis and the treatment plan prepared for Brandon is what the thoracic surgeon has told us. Sarcoidosis is a disease Brandon will live with the rest of his life, there is currently no cure. They do know sarcoidosis sometimes turns into lymphoma. Brandon will need to have a biopsy done at least every two years to make sure this does not occur. We will first try to manage Brandon's sarcoidosis with steroids. If they do not work Brandon may need chemotherapy or another immunosuppressive drug. Brandon's spleen is also enlarged and may need to be removed if the steroids do not reduce the size. Brandon is still having a hard time catching his breath and he is still having abdominal pain. We hope to get our referral to the pulmonologist soon and get control of this disease! Thank you all so much for all of your prayers and continued prayers as we go through this journey!