Going Home 6/27/13...
I have had a lot of trouble writing this post. I guess it's because the results were not what we anticipated. We could never have imagined things going as wrong as they have. Carter's X-ray looked awful. The left side of his pelvis is rotated out. It is rotated so badly that everyone that has read the X-Ray thinks that his leg is turned out in it. That's until they realize he is casted, and he can not turn his legs out. His pelvis is extremely damaged. It is so damaged that there is nothing that can be done right now to improve this situation. We are frustrated, hurt and absolutely exhausted! We have so many concerns for Carter's future. Without a stable pelvis, there is a risk his bladder prolapse (come back out). We are unsure how this will affect his walking, or if he will even be able to walk again. We have a lot of questions and only time will be able to answer them.
The plan for right now is to go home tomorrow. The only reason we are being allowed to be discharged is that I am a nurse. Carter will still have his external fixators, casts and a catheter. He is still on a lot of medication that we will start weaning again once we get home. We will return to Johns Hopkins in 4 weeks to have everything removed and re-evaluated. There is a chance that his bladder will prolapse and a chance we will have to have the surgery completely redone. There are still a ton of questions that have been unanswered. For right now Carter's pelvis is "as good as its going to get" according to his Orthopedic Doctor.
We are so hurt, and we have questioned every aspect of Carter's care. As a parent you want what is best for you child. Hearing that his pelvis was as good as it is going to get really hurts. Knowing that a screw moved around and damaged Carter's pelvis for 12 weeks, making it beyond repair right now, is killing us. We had so many high expectations for this surgery. We planned for this surgery to work, Carter to walk again, and for the surgery to only improve Carter's life. None of these things are certain right now, and we are heartbroken. We are happy to be traveling home tomorrow, and we know that God can perform miracles. Please continue to pray for Carter. Pray for complete healing of his pelvis. Pray the damage can and will be fixed. Pray his bladder does not prolapse. Please just pray for overall health. We miss our child so much it hurts. We are ready to see him running and playing again. Although it is harder than ever to see right now, we know God has a perfect plan. As always... To Him be the Glory!!!
Even though Carter still has his external fixators on he was able to be held. He was thrilled to get out of the bed!!! He said Yesss!!!!
We just LOVE this sweet face!