I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:14

Johns Hopkins January 10, 2012

Carter loves looking out our hotel window! :)

Carter had two appointments today.  First we saw his urologist and he re-informed us that Carter has to be thriving, steadily gaining weight and properly receiving nutrition before he qualifies to have his "big" surgery.  We already knew this although, he did inform us that May would be an unrealistic date to set.  We met with the GI team next.  They spent a lot of time with us and really examined every aspect of Carter's GI system.  After reviewing all of Carter's symptoms and all of the test he has already had they came up with two things it could be. The first could be extremely severe reflux. The second could be that Carter stomach is not working.  Our Doctor is leaning more towards his stomach not working, although your stomach does not just stop working.  Something would have had to alter it and Carter has not had anything done to his stomach.  So that is why we have to rule out severe reflux. Although all of the tests thus far have shown that Carter is not refluxing, he will need further testing to make sure.  Our Doctor is going to work on getting everything together tomorrow for the next step.  Carter is going to have a N-J tube placed.  This is a tube very similar to what he has now in his nose, although it goes down into his intestines and bypasses the stomach.  We will be almost certain that Carter's stomach is not working if he tolerates the feedings going through the N-J tube.  Carter will also have a biopsy done of his stomach and our Doctor will look into his stomach just to make sure everything looks ok.  We expect for these test to be done on Thursday or Friday.  Although, this is not the news we were expecting to hear we are happy to finally be getting to the bottom of all of this.  Please continue to pray for Carter.  We hope to have answers by the end of the week.


  1. So sorry it all didn't provide all the news you were hoping for. I know how frustrating all that can be. It always seemed as though Kaity would have some setback or another. Even when in the hospital. She was always a terrible, surly patient to be so small lol. She would practically refuse to eat until she would get home and THEN she would eat once she got home. Does Carter have any type of curvature on his spine? I ask because Kaity had scoliosis and lordosis that made her lean on the side of her stomach. She was literally squishing her stomach, causing her to throw-up. Crazy, but it got alot better when the put the Herrington rods in.
    On a brighter note , Carter looks ADORABLE in the dino outfit!!! I hope the rest of your stay goes better. Keep an eye on the news, my uncle Rob Roblin does the news up there!

  2. Praying fervently for Carter and Mommy and Daddy. Love you all. XOXO Mrs. Towns

  3. Hey you guys. Thank you for the update. I am so thankful for the team of doctors ya'll have been blessed with. Little Carted reminds me of the little tree frogs that stick on the glass of my Windows at home the way he is standing there on that window . He is just so cute. Give him love for me and We love ya'll and are praying. What a mighty God we serve!