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I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:14

Bye Bye PICU!!! 6/2/13


We can hold him, take him outside and snuggle with Carter as much as we want to now!  Why? Because... Carter was discharged from the PICU to The Children’s Home on Saturday!!  They weaned him off all of his IV pain and sedation medications, and they turned them completely off Friday morning.  He had to stay in the PICU for 24 hours after the medications were turned off to make sure he could remain stable.  He did great.  He was, and is still, on A TON of oral pain and sedation medications.  The pain team did not really want to discharge him, but thankfully our Urologist and PICU team wanted him to leave the hospital before he caught something else.  Being discharged from the PICU is a very rare thing, but thankfully they came together and allowed us to leave the hospital. The fact that I am a nurse really was the determining factor.  I am thankful everyday that God led me to the career he did.  Once we made sure that the pharmacy could fill, all 13 of them, Carter’s medications we rolled out the door. 

First, we took Carter to the hospital courtyard.  It was his first time outside since March 27th.  He was so excited!  He immediately started laughing, clapping and smiling, and he has not stopped since.  He has done so well with everything since leaving the hospital.  I was given a wean schedule for all of his oral medications. It will take a month or two to completely get him off of all of the medications, but I plan to start weaning them again tomorrow. We are praying that he will tolerate the wean well.  We really think being out of the hospital and that being able to distract him will help.  He has appointments tomorrow and Tuesday to check his bladder and kidneys.  Please pray they go well.  Please continue to pray for Carter.  He has made HUGE improvements, but still has a long way to go.  Please pray for Brandon and I as we learn to manage Carter's new care.  I will end this post with a lot of pictures!  You can easily see God’s love in Carter’s smile.  As always to Him be the Glory!!! 

On our way out of the PICU.  He was a little nervous about what was going on.
 Is that sunshine?
 It is!!! Yay!
 This is the life!

 Daddee LOOK i'm holding myself up all by myself!!!
 LOOK Mommy FISH!!!
 Are you sure you can hold me???
 We learned really quick just how sensitive Carter's medications make him to the sun.
 So happy!
Just talking on the phone! Thank you all SO much for praying for me!!!

16 comments:

  1. Carter looks amazing! Keep going little dude! Prayers sent!

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  2. Such a beautiful baby and a fantastic smile! We have such a loving God!! All praise to Him!!

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  3. We are so happy and thankful for Carter's continuing recovery.
    Shirley

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  4. Really does my heart good to see that amazing sweet little boy out of the hospital!!! God is sooo good!!!

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  5. It is wonderful to see him sitting up and smiling! Continued prayers for Carter, Brandon and you, Meagan!

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  6. Love love love that he is doing so well!!!

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  7. So nice to see his smiling face again! You can just see Jesus all over him! I pray you continue to receive Gods many blessings as he weans off meds.

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  8. YOU ARE REMARKABLE PARENTS AND GOD WILL BLESS YOU FOR THIS.

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  9. Thrilled to read your exciting update on the giant steps Carter has made! God is always good and faithful. So happy for you!! Will continue to pray you home!!!

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  10. God truly is good all the time. Not sure whose smile is the biggest - his or yours. Have a day full of joy!

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  11. Yay Carter! Such a blessing. Continued prayers that all continues to go well for all of you. Carla N.

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  12. God's miracle continues to show through your sweet body and shows us all through your sweet smile. I will continue to pray for your journey God has you living through with your family. I know and we all know that God is the Father, healer, the all mighty one that grows within us all. Praise be to his almighty glory. Prayers for you all, Jo Anne Ponder

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  13. The Hatcher FamilyJune 3, 2013 at 3:59 PM

    Absolutely precious! So happy for all of you!

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  14. I am so excited about little Carter's progress. He's getting there. Praise the Lord. Will keep praying. Cris White

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  15. Oh! This news made my heart smile. His journey of healing is proof of Him! To God be the glory !!

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