There haven't been many changes since the last post. We are still in the PICU, and we may be for quite a while. The only real change that has been made is that the doctors are trying to wean Carter off the strong sedation/pain medication again. The reason they want to do this is because it is a medicine that can only be given in the PICU and the Urology team would like to get him to the Urology floor. The nurses on the Urology floor never have more than 2 patients and they are precisely trained to take care of children with Carter's condition. Carter is still on a LOT of pain and sedation medications. He will continue to be throughout our entire stay. This is one of the most painful procedures known, so this won't be a quick and easy recovery.
Carter has had a good day today. In weaning off of the very strong medication, they are going up on doses and frequency of almost every other medications he is on. We are fine with this as long as we are making progress. It has been made clear that we do not want Carter to move. Jeopardizing this procedure just for the sake of getting to a regular floor, in everyone's opinion, is not wise. This procedure needs to succeed and last forever for Carter to have a healthy life. If the current regimen of medications are not successful in keeping Carter still, then we will have to stay on the medication that requires us to be in the PICU. We are fine with that, too. Time is time to us. We have to be here until he is healed, no matter what floor we are on.
We want to say thank you again to everyone that is praying for Carter, our family, and the doctors/nurses. Also, thank you to everyone that has sent us a card, a care package, and gift. We are so blessed to have such wonderful friends and family. Please say a prayer for all the other families in this hospital. There are plenty of people out there that could use the peace we have come to know from our Loving Father. As always... TO HIM BE THE GLORY!