There haven't been many changes since the last post. We are still in the PICU, and we may be for quite a while. The only real change that has been made is that the doctors are trying to wean Carter off the strong sedation/pain medication again. The reason they want to do this is because it is a medicine that can only be given in the PICU and the Urology team would like to get him to the Urology floor. The nurses on the Urology floor never have more than 2 patients and they are precisely trained to take care of children with Carter's condition. Carter is still on a LOT of pain and sedation medications. He will continue to be throughout our entire stay. This is one of the most painful procedures known, so this won't be a quick and easy recovery.
Carter has had a good day today. In weaning off of the very strong medication, they are going up on doses and frequency of almost every other medications he is on. We are fine with this as long as we are making progress. It has been made clear that we do not want Carter to move. Jeopardizing this procedure just for the sake of getting to a regular floor, in everyone's opinion, is not wise. This procedure needs to succeed and last forever for Carter to have a healthy life. If the current regimen of medications are not successful in keeping Carter still, then we will have to stay on the medication that requires us to be in the PICU. We are fine with that, too. Time is time to us. We have to be here until he is healed, no matter what floor we are on.
We want to say thank you again to everyone that is praying for Carter, our family, and the doctors/nurses. Also, thank you to everyone that has sent us a card, a care package, and gift. We are so blessed to have such wonderful friends and family. Please say a prayer for all the other families in this hospital. There are plenty of people out there that could use the peace we have come to know from our Loving Father. As always... TO HIM BE THE GLORY!
God bless this sweet little boy and you and Brandon also. Prayers continuing to be lifted. Carla Nations
ReplyDeleteI have been touched by Carter's story and your strong faith in Father God. I am praying for ya'll and believing with you that God is enough.
ReplyDeleteEphesians3:17 And I pray that you, being rooted and established in love, 18may have power, together with all the Lord’s holy people, to grasp how wide and long and high and deep is the love of Christ, 19and to know this love that surpasses knowledge—that you may be filled to the measure of all the fullness of God.
20Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen
I am so glad to hear that Carter has had a good day. My family an I are praying daily for you both and Carter. Your faith and testimony are such an inspiration. I check for updates everyday and with absolute certainty know that Gods will, will be done. Thank you for sharing this time in your lives with us and know that out prayers will remain continuous.
ReplyDeleteI'm still praying for Carter and his family. I can't say that I know what your going through, because I can't. But I want to share my favorite verse with you. I might already have done so, but it bears repeating. Psalm 34:4 I sought the Lord and he heard me and delivered me from all my fears. Praise God that He really does! I think on this verse and repeat it all the time. Love and prayers, Lola
ReplyDeletePraying for your sweet, precious child and you. May God continue to bless you and keep you. Keep your eyes on Him, He is the Great Physician. Praying from Tylertown, MS.
ReplyDeleteLove to see that you can put your arms around your little man. Continue to keep y'all in my prayers.
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