verse

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:14

Monday #3 4/8/13


Carter had a great and busy day.  He had another ultrasound this morning of his blood clot.  Carter's Doctor's have concluded that there is not a treatment that Carter would benefit from right now.  We are going to continue to watch the area closely and pray for it to resolve.  Carter's Urologist and Orthopedic  Surgeon both feel it is time to take Carter back to surgery.  Carter is not benefiting from waiting and only having complication after complication right now.  They are planning to take him back to surgery on Wednesday.  This will be a much more intense surgery than the last surgery.  They will bring his pelvic bones closer together using the fixators that are already in place.  They will put Carter's bladder back inside his body and place a metal plate over it.  They may use donor skin to cover the metal plate, but we will not know if this is necessary until they have put his bladder inside his body.  A pediatric surgeon will also come in and change Carter's G tube to a GJ tube.  He will continue to have the external fixators and be in traction for 6-8 weeks after the surgery.

The surgery will take about 10 hours and will require at least 3 different Doctors. Carter will go to PICU afterwards and remain sedated for a few days.  We have so many concerns about the surgery.  Carter did not tolerate this last surgery well and we are praying he will tolerate this one better.  Due to all of the complications Carter has had all of our plans and timeline have completely changed.  We know he really needs this next surgery and his body is not tolerating sitting like it is now.  We are praying for his lungs, the blood clot and his intestines to tolerate the surgery well.  We know he needs this surgery, but it will never be easy handing him over.

Carter is starting to build a tolerance to the sedatives he is currently receiving.  Today he woke up for a few hours and played without crying.  He was content laying in bed and seemed comfortable, so Brandon and I did not feel the need to increase his sedatives. We will talk to the pain team tomorrow about increasing his sedatives.  He has not felt good tonight because he was awake so much today. It was so nice to see his eyes and his little personality, but we know the goal for right now is for him to be sedated, healing and resting. We have missed him so much and can not wait to have him back.  We are not looking forward to this next surgery, but we know it is just one step closer to being able to hold and have our baby back.  We will continue to pray for peace about the surgery and for Carter's very sick body to tolerate it well.  We should know more details about the surgery tomorrow and I will try to update again tomorrow night.  Thank you all so much for all of your prayers and continued prayers.  As always... To Him be the Glory!
A smile even when he was to sleepy to hold his eyes open.
Completely worn out! He fell asleep with the room phone we finally found today!

15 comments:

  1. Praying for this sweet child of God! <3

    ReplyDelete
  2. Prayers continue for all of you especially for Carter that he tolerates this surgery better and God guides the doctors and medical staff so that your little boy continues to heal.

    ReplyDelete
  3. Praying for all of you and especially that Carter will do well with this next surgery. I love seeing his smile again, it's so sweet. Just remember that God is with you in this valley, as the song says, "Even in the valley, God is good!" We know that God is in control and I can't begin to imagine how hard this is on you and Brandon, not being able to hold your sweet little man and rock him. Hopefully one day soon that will happen again. Looking forward to next update.

    ReplyDelete
  4. You are still in my prayers and I will ask others to pray for him. God's ways are not our ways but we know He is in control. Here is my favorite verse it has helped me through many trials in my life.
    Psalm 34:4 I sought the Lord and he heard me and delivered me from all my fears.
    God bless you and give you strength.

    ReplyDelete
  5. Praying for healing for Carter and peace and comfort for you and Brandon as you search for God's guidance and plan. I admire you both for your courage and faith thus far and pray that you hold on to both of these (as well as each other and your family and friends) in the upcoming days. And praying that the surgery will put you closer to holding your sweet Carter!

    ReplyDelete
  6. I am still praying for Carter and the both of you. Jesus will never leave you or forsake you.

    ReplyDelete
  7. God has blessed you to be able to see a sweet smile throughout all of this. I as well as others continue to pray daily (sometimes numerous times daily) for Carter to feel no pain and healing for his body. God is in control and I admire you for being so faithful. I also pray you maintain this faith and receive peace of mind. Jennifer from Florence.

    ReplyDelete
  8. Praying for healing!

    ReplyDelete
  9. Glad to see smiles. Praying, praying, and praying some more for you little man. And for you and Brandon too. Love y'all!

    ReplyDelete
  10. Keeping you all in our thoughts and prayers.

    ReplyDelete
  11. Praying daily for Carter and for both of you. He is quite a special little boy. God has truly blessed you with such a gift. Keep the faith.

    ReplyDelete
  12. Praying for for this precious child. His smile melts my heart.

    ReplyDelete
  13. Prayers going out to this precious child of god from Puckett Mississippi. I pray that the surgery goes well for your child. May the angles watch over you all. :)

    ReplyDelete
  14. The Hatcher FamilyApril 9, 2013 at 6:39 PM

    Our prayers and thoughts for your precious boy

    ReplyDelete